A good deed done, but what use is it if it goes to waste??
Posted: 2016-06-19 10:34
I posted the following petition at Change.org for a friend of mine whose name is on it.
It was posted an entire month ago and as far as Change.org goes, there is very little to show for the effort even though it would actually be helpful to other human beings who have to put up with a rather literally life-damaging health problem.
It is the only petition dealing with the issue of regulation/restriction of Loperamide/Imodium in the entire Change.org website, or probably in the entire Internet. It has all of 12 signatures in the entire month and that is fucking pathetic.
My friend is beside herself. She just hasn't got any swear words left.
I also set up an account at a very large IBS/IBS-D forum and posted links at least twice. I exercised restraint because I am a new account there and noobs are not supposed to spam a site they've just joined.
It most emphatically is NOT "irrelevant", nor should it recieve the utter apathy it's gotten so far. It is EXACTLY and PRECISELY relevant, NOW is the best time to nip a stupid idea right at the beginning, and because of two cases of abuse in New York, thousands of people including my friend will be deliberately trapped in a humiliating and PERMANENT state of drastically lowered quality of life.
PLEASE help us out here.
It's a stupid situation, and I probably did every single thing wrong that it was possible to do with trying to get this noticed.
You guys are the absolute last card I got in the deck.
This is a long-term health issue that quite literally causes people to feel like SHIT ANIMALS.
https://www.change.org/p/marsha-b-henderson-fda-assistant-commissioner-for-women-s-health-halt-the-proposed-restriction-of-imodium-loperamide
This is the statement my friend made in the petition:
In 2015 I was diagnosed with gallstones after three painful attacks and a year of intermittent loss of correct bowel function that made me extremely shy and reclusive.
I had galbladder removal surgery which went very well.
I subsequently informed myself concerning the permanent aftereffects. Learning how to deal with them was hard, since what works beautifully for one patient may be disastrous for another, and the loss of self respect I experienced was NOT necessary.
I do not regret the surgery. I do regret the months of shame I suffered before it, and the occasional lapses of control I still suffered after it.
Before I go out in public, a simple small dose of Loperamide/Imodium the night before helps me to feel confident, normal, and above all, HUMAN.
It was posted an entire month ago and as far as Change.org goes, there is very little to show for the effort even though it would actually be helpful to other human beings who have to put up with a rather literally life-damaging health problem.
It is the only petition dealing with the issue of regulation/restriction of Loperamide/Imodium in the entire Change.org website, or probably in the entire Internet. It has all of 12 signatures in the entire month and that is fucking pathetic.
My friend is beside herself. She just hasn't got any swear words left.
I also set up an account at a very large IBS/IBS-D forum and posted links at least twice. I exercised restraint because I am a new account there and noobs are not supposed to spam a site they've just joined.
It most emphatically is NOT "irrelevant", nor should it recieve the utter apathy it's gotten so far. It is EXACTLY and PRECISELY relevant, NOW is the best time to nip a stupid idea right at the beginning, and because of two cases of abuse in New York, thousands of people including my friend will be deliberately trapped in a humiliating and PERMANENT state of drastically lowered quality of life.
PLEASE help us out here.
It's a stupid situation, and I probably did every single thing wrong that it was possible to do with trying to get this noticed.
You guys are the absolute last card I got in the deck.
This is a long-term health issue that quite literally causes people to feel like SHIT ANIMALS.
https://www.change.org/p/marsha-b-henderson-fda-assistant-commissioner-for-women-s-health-halt-the-proposed-restriction-of-imodium-loperamide
This is the statement my friend made in the petition:
In 2015 I was diagnosed with gallstones after three painful attacks and a year of intermittent loss of correct bowel function that made me extremely shy and reclusive.
I had galbladder removal surgery which went very well.
I subsequently informed myself concerning the permanent aftereffects. Learning how to deal with them was hard, since what works beautifully for one patient may be disastrous for another, and the loss of self respect I experienced was NOT necessary.
I do not regret the surgery. I do regret the months of shame I suffered before it, and the occasional lapses of control I still suffered after it.
Before I go out in public, a simple small dose of Loperamide/Imodium the night before helps me to feel confident, normal, and above all, HUMAN.